Myra Bluebond-Langner

Papers authored by Myra Bluebond-Langner

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2021 Adam Rapoport, Myra Bluebond-Langner

, Michelle Meiring, Richard Hain, Ann Goldman, Richard Langner

Decision-making with children, young people, and parents

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Myra Bluebond-Langner

, Ignasi Clemente

Children’s views of death

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This paper is made freely available by the publisher.

Finella Craig

, Ellen M. Henderson

, Bhumik Patel, Fliss E. M. Murtagh, Myra Bluebond-Langner

Palliative care for children and young people with stage 5 chronic kidney disease

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L. Coombes

, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner

, L. Chambers, F. E. M. Murtagh, R. Harding

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

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Bhumik Patel, Jonathan Downie, Julie Bayliss, Andrea Stephenson, M. Bluebond-Langer

Long-term daily administration of aprepitant for the management of intractable nausea and vomiting in children with life-limiting conditions: a case series

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2020 Danai Papadatou

, Vasiliki Kalliani, Eleni Karakosta, Panagiota Liakopoulou, Myra Bluebond-Langner

Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making

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Myra Bluebond‐Langner

, Nicolas Hall, Katherine Vincent, Ellen M. Henderson

, Jessica Russell, Emma Beecham

, Gemma Bryan

, Jennifer E. Gains

, Mark N. Gaze

, Olga Slater

, Richard W. Langner

, Darren Hargrave

Parents’ responses to prognostic disclosure at diagnosis of a child with a high‐risk brain tumor: Analysis of clinician‐parent interactions and implications for clinical practice

Download from onlinelibrary.wiley.com

Nicky Harris, Jane Noyes, Lorna Fraser, Susie Lapwood, Emily Harrop, Maddie Blackburn, Jayne Price, Lizzie Chambers, Myra Bluebond‐Langer

Managing and sharing research data in children's palliative care: Risks, benefits and imponderables

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Sophie Bertaud

, David F. A. Lloyd

, Gurleen Sharland, Reza Razavi

, Myra Bluebond‐Langner

The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study

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Lorna K. Fraser, Myra Bluebond-Langner

, Julie Ling

Advances and Challenges in European Paediatric Palliative Care

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Joanne Wolfe, Myra Bluebond-Langner

Paediatric palliative care research has come of age

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2019 Bryan A. Sisk, Chris Feudtner, Myra Bluebond-Langner

, Barbara Sourkes, Pamela S. Hinds, Joanne Wolfe

Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children

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Ashleigh E. Butler

, Katherine Vincent, Myra Bluebond-Langner

Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children

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Chris Feudtner, Abby R. Rosenberg, Renee D. Boss, Lori Wiener, Maureen E. Lyon, Pamela S. Hinds, Myra Bluebond-Langner

, Joanne Wolfe

Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop

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Nicky Harris

, Maddie Blackburn, Jane Noyes

, Jan Aldridge, Susie Lapwood, Helena Dunbar

, Jayne Price

, Sarah Mitchell, Lizzie Chambers, Myra Bluebond‐Langner

Undertaking doctoral research with children and young people with life‐limiting or life‐threatening conditions

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Erica C. Kaye

, Melanie Gattas, Myra Bluebond‐Langner

, Justin N. Baker

Longitudinal investigation of prognostic communication: Feasibility and acceptability of studying serial disease reevaluation conversations in children with high‐risk cancer

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Ellen M. Henderson

, Dilini Rajapakse, Paula Kelly, Tanya Boggs, Myra Bluebond-Langner

Patient-Controlled Analgesia for Children With Life-Limiting Conditions in the Community: Results of a Prospective Observational Study

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Lori Wiener

, Myra Bluebond-Langner

Commentary: Treating the Pediatric Cancer Patient: Insights That Have Stood the Test of Time

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Jonathan Mullin

, Joanne Wolfe, Myra Bluebond‐Langner

, Finella Craig

Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents

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Alan Stein, Louise Dalton, Elizabeth Rapa, Myra Bluebond-Langner

, Lucy Hanington, Kim Fredman Stein, Sue Ziebland

, Tamsen Rochat, Emily Harrop

, Brenda Kelly, Ruth Bland, Theresa Betancourt, Catherine D'Souza, Mina Fazel, Daniel Hochhauser and 5 other authors

Communication with children and adolescents about the diagnosis of their own life-threatening condition

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Papers authored by Myra Bluebond-Langner