Myra Bluebond-Langner

All papers authored by Myra Bluebond-Langner

This paper was not found in any repository, but could be made available legally by the author.

Janet Watts, Stuart Ekberg, Myra Bluebond-Langner

, Richard Langner, Sara Fleming, Susan Danby, Katie Ekberg, Patsy Yates, Natalie Bradford, Angela Delaney, Anthony Herbert

Questions directed to children with diverse communicative competencies in paediatric healthcare consultations

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Hannah May Scott

, Lucy Coombes, Debbie Braybrook

, Daney Harðardóttir, Anna Roach

, Katherine Bristowe

, Myra Bluebond-Langner

, Lorna K. Fraser

, Julia Downing, Bobbie Farsides, Fliss Em Murtagh

, Clare Ellis-Smith

, Richard Harding

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

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2023 Myra Bluebond-Langner

, Sara Wakeling, Katherine Vincent, Ashleigh Butler, Kate Brown, Victoria Jowett

British Congenital Cardiac Association Fetal Cardiology Standards: impact of Patient and Public involvement exercise on the development of clinical standards

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This paper is made freely available by the publisher.

Katie Gallagher, Kathy Chant, Alex Mancini, Myra Bluebond-Langner

, Neil Marlow

The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care

Download from doi.org

Lucy Coombes

, Daney Harðardóttir, Debbie Braybrook

, Hannah May Scott

, Katherine Bristowe

, Clare Ellis-Smith

, Lorna K. Fraser

, Julia Downing, Myra Bluebond-Langner

, Fliss Em Murtagh

, Richard Harding

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

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This paper was not found in any repository; the policy of its publisher is unknown or unclear.

H. M. Scott, D. Braybrook, D. Harðardóttir, C. Ellis Smith, R. Harding, A. Anderson, J. Bayly, L. Bate, Myra Bluebond-Langner

, D. Box, K. Bristowe, R. Burman, L. Chambers, L. Coombes, A. Craft and 33 other authors

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

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Lucy Coombes

, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner

, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

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Daney Haroardottir, Lucy Coombes, Debbie Braybrook, Hannah Scott, Anna Roach, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner

, Joanna Laddie, Michelle Hills, Christina Ramsenthaler, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding

Patient-centred outcome measure design: the perspectives and preferences of children and young people with life-limiting or life-threatening conditions

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2022 Myra Bluebond-Langner

To Tell or Not to Tell: Talking to Seriously Ill Children About Illness, Death and Dying

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Lucy Coombes, Debbie Braybrook, Anna Roach, Hannah Scott, Daney Hardardottir, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Myra Bluebond-Langner

, Lorna K. Fraser, Julia Downing, Bobbie Farsides, Fliss E. M. Murtagh, Richard Harding

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Download from link.springer.com

Katherine Green, Christine Dahl, Mette Jorgensen, Patricia O'Hare, Enrico Opocher, Olga Slater, Jenny Gains, Yen-Ching Chang, Kristian Aquilina, Richard Bowman, Bronwen Oldridge, Thomas Jacques, Thomas Stone, Hoong-Wei Gan, Myra Bluebond-Langner

and 1 other authors

Survival of the Fittest? A Prognostic Evaluation of Paediatric Low-Grade Glioma (Plgg) Survivor Functional Outcomes

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Debbie Braybrook, Lucy Coombes, Anna Roach, Hannah Scott, Daney Haroardottir, Katherine Bristowe, Clare Ellis-Smith, Michelle Hills, Linda Maynard, Anna-Karenia Anderson, Eve Namisango, Irene Higginson, Julia Downing, Myra Bluebond-Langner

, Lorna Fraser and 2 other authors

"if they knew what I thought was important. that would help a lot more'': Methods for involving children and young people with life-limiting and life-threatening conditions in development of a paediatric palliative care outcome measure

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Katie Ekberg

, Stuart Ekberg

, Lara Weinglass

, Anthony Herbert

, Johanna Rendle‐Short

, Myra Bluebond‐Langner

, Patsy Yates

, Natalie Bradford

, Susan Danby

Attending to child agency in paediatric palliative care consultations: Adults’ use of tag questions directed to the child

Download from onlinelibrary.wiley.com

2021 Finella Craig

, Ellen M. Henderson

, Bhumik Patel, Fliss E. M. Murtagh, Myra Bluebond-Langner

Correction to: Palliative care for children and young people with stage 5 chronic kidney disease

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Julie Hartley, Myra Bluebond-Langner

, Bridget Candy, Jonathan Downie, Ellen M. Henderson

The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review

Download from publications.aap.org

Sidharth Vemuri

, Ashleigh E. Butler

, Katherine Brown

, Jo Wray

, Myra Bluebond-Langner

Palliative care for children with complex cardiac conditions: survey results

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All papers authored by Myra Bluebond-Langner