Yllka Kodra - Dissemin

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All papers authored by Yllka Kodra

This paper is made freely available by the publisher.

2021 Patrizio Armeni, Marianna Cavazza, Entela Xoxi

ORCID

, Domenica Taruscio

ORCID

, Yllka Kodra

ORCID

Reflections on the Importance of Cost of Illness Analysis in Rare Diseases: A Proposal

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This paper is made freely available by the publisher.

2020 Natália Oliva-Teles

ORCID

, Maria Chiara de Stefano, Maria Chiara de Stefano, Louise Gallagher, Severin Rakic

ORCID

ORCID

, Goran Cuturilo, Silvana Markovska-Simoska

ORCID

, Isabella Borg, Jeanne Wolstencroft

ORCID

, Zeynep Tümer

ORCID

, Adrian J. Harwood, Yllka Kodra

ORCID

ORCID

Rare Pathogenic Copy Number Variation in the 16p11.2 (BP4–BP5) Region Associated with Neurodevelopmental and Neuropsychiatric Disorders: A Review of the Literature

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This paper is made freely available by the publisher.

Salma R. Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L. T. van den Akker, Natasha M. Appelman-Dijkstra, Jerome Bertherat, Martine Cools

ORCID

, Olaf M. Dekkers, Yllka Kodra

ORCID

ORCID

, Arelene Smyth, Christopher Smythe, Domenica Taruscio

ORCID

and 1 other authors

The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes

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This paper is made freely available by the publisher.

Rosaria Talarico, Diana Marinello, Sara Cannizzo, Andrea Gaglioti, Simone Ticciati, Claudio Carta, Yllka Kodra

ORCID

, Mojgan Azadegan, Domenica Taruscio, Marta Mosca, Giuseppe Turchetti

Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider

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This paper is made freely available by the publisher.

Yllka Kodra

ORCID

, Marianna Cavazza, Marta de Santis, Andrea Guala, Maria-Elena Liverani, Patrizio Armeni, Maura Masini, Domenica Taruscio

Social Economic Costs, Health-Related Quality of Life and Disability in Patients with Cri Du Chat Syndrome

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This paper is made freely available by the publisher.

Marco Carbone, Yllka Kodra

ORCID

, Adele Rocchetti, Valerio Manno, Giada Minelli, Alessio Gerussi

ORCID

, Vincenzo Ronca

ORCID

, Federica Malinverno, Laura Cristoferi, Annarosa Floreani

ORCID

, Pietro Invernizzi

ORCID

, Susanna Conti, Domenica Taruscio

Primary Sclerosing Cholangitis: Burden of Disease and Mortality Using Data from the National Rare Diseases Registry in Italy

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