Yllka Kodra - Dissemin

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All papers authored by Yllka Kodra

This paper is made freely available by the publisher.

2021 Patrizio Armeni, Marianna Cavazza, Entela Xoxi

ORCID

, Domenica Taruscio

ORCID

, Yllka Kodra

ORCID

Reflections on the Importance of Cost of Illness Analysis in Rare Diseases: A Proposal

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2020 Natália Oliva-Teles

ORCID

, Maria Chiara de Stefano, Maria Chiara de Stefano, Louise Gallagher, Severin Rakic

ORCID

ORCID

, Goran Cuturilo, Silvana Markovska-Simoska

ORCID

, Isabella Borg, Jeanne Wolstencroft

ORCID

, Zeynep Tümer

ORCID

, Adrian J. Harwood, Yllka Kodra

ORCID

ORCID

Rare Pathogenic Copy Number Variation in the 16p11.2 (BP4–BP5) Region Associated with Neurodevelopmental and Neuropsychiatric Disorders: A Review of the Literature

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Salma R. Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L. T. van den Akker, Natasha M. Appelman-Dijkstra, Jerome Bertherat, Martine Cools

ORCID

, Olaf M. Dekkers, Yllka Kodra

ORCID

ORCID

, Arelene Smyth, Christopher Smythe, Domenica Taruscio

ORCID

and 1 other authors

The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes

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Rosaria Talarico, Diana Marinello, Sara Cannizzo, Andrea Gaglioti, Simone Ticciati, Claudio Carta, Yllka Kodra

ORCID

, Mojgan Azadegan, Domenica Taruscio, Marta Mosca, Giuseppe Turchetti

Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider

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Yllka Kodra

ORCID

, Marianna Cavazza, Marta de Santis, Andrea Guala, Maria-Elena Liverani, Patrizio Armeni, Maura Masini, Domenica Taruscio

Social Economic Costs, Health-Related Quality of Life and Disability in Patients with Cri Du Chat Syndrome

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Marco Carbone, Yllka Kodra

ORCID

, Adele Rocchetti, Valerio Manno, Giada Minelli, Alessio Gerussi

ORCID

, Vincenzo Ronca

ORCID

, Federica Malinverno, Laura Cristoferi, Annarosa Floreani

ORCID

, Pietro Invernizzi

ORCID

, Susanna Conti, Domenica Taruscio

Primary Sclerosing Cholangitis: Burden of Disease and Mortality Using Data from the National Rare Diseases Registry in Italy

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