Published in
Springer Verlag, The Patient - Patient-Centered Outcomes Research, 3(10), p. 283-293
DOI: 10.1007/s40271-016-0213-9
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Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review
Journal article published in 2016 by
Vanessa C. Delisle,
Stephanie T. Gumuchian,
Danielle B. Rice,
Alexander W. Levis,
Lorie A. Kloda,
Annett Körner,
Brett D. Thombs 
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