Dissemin is shutting down on January 1st, 2025

Published in

American Public Health Association, American Journal of Public Health, 7(102), p. 1254-1259, 2012

DOI: 10.2105/ajph.2011.300418

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Research Participation as Work: Comparing the Perspectives of Researchers and Economically Marginalized Populations

Journal article published in 2012 by Peter Davidson ORCID, Kimberly Page
This paper is available in a repository.
This paper is available in a repository.

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Preprint: archiving forbidden
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Postprint: archiving forbidden
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Published version: archiving forbidden
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Abstract

We examined the historical and regulatory framework of research with human participants in the United States, and described some possible unintended consequences of this framework in the context of paying young injection drug users for their time participating in behavioral and medical research. We drew upon our own experiences while conducting a long-running epidemiological study of hepatitis C virus infection. We found that existing ethical and regulatory framings of research participation may lead to injustices from the perspectives of research participants. We propose considering research participation as a specialized form of work and the use of community advisory boards to facilitate discussion about appropriate compensation for research participation among economically marginalized populations.