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A diagnosis of hepatitis C: insights from a study on patients' experiences

Journal article published in 2010 by Carla Treloar, Jamee Newland, Magdalena Harris, Rachel Deacon ORCID, Lisa Maher
This paper is available in a repository.
This paper is available in a repository.

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Question mark in circle
Preprint: policy unknown
Question mark in circle
Postprint: policy unknown
Question mark in circle
Published version: policy unknown

Abstract

BACKGROUND Previous research has documented patient experiences of hepatitis C virus (HCV) diagnosis to be without sufficient pretest and post-test discussions – health professionals have expressed a need for training in this area. OBJECTIVE This study aimed to examine the diagnosis experiences of 24 people diagnosed with HCV in the preceding 2 years. METHODS Face-to-face interviews of 24 participants (recruited through advertising) were conducted. RESULTS Overall, the HCV diagnosis experience of participants was poor. Participant narratives of HCV diagnosis were characterised by confusion in relation to tests that were performed and the implications of test results. Post-test discussions were inadequate – there was a reported lack of information, support and referral provided to participants. DISCUSSION Most clinicians do not receive specialised training in hepatitis C but may be involved in diagnoses in their careers. The impact of negative diagnosis experiences for patients can be serious and long term. These findings highlight areas of suboptimal diagnosis experience and suggest training and support needs of health professionals.