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Springer (part of Springer Nature), Intensive Care Medicine

DOI: 10.1007/s00134-016-4260-4

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CAESAR: a new tool to assess relatives’ experience of dying and death in the ICU

This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

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Abstract

Purpose: To develop an instrument designed specifically to assess the ă experience of relatives of patients who die in the intensive care unit ă (ICU). ă Methods: The instrument was developed using a mixed methodology and ă validated in a prospective multicentre study. Relatives of patients who ă died in 41 ICUs completed the questionnaire by telephone 21 days after ă the death, then completed the Hospital Anxiety and Depression Scale, ă Impact of Event Scale-Revised and Inventory of Complicated Grief after ă 3, 6, and 12 months. ă Results: A total of 600 relatives were included, 475 in the main cohort ă and 125 in the reliability cohort. The 15-item questionnaire, named ă CAESAR, covered the patient's preferences and values, interactions ă with/around the patient and family satisfaction. We defined three groups ă based on CAESAR score tertiles: lowest (= 69, n = 121, 29.3 %). Factorial ă analysis showed a single dimension. Cronbach's alpha in the main and ă reliability cohorts was 0.88 (0.85-0.90) and 0.85 (0.79-0.89), ă respectively. Compared to a high CAESAR score, a low CAESAR score was ă associated with greater risks of anxiety and depression at 3 months ă [1.29 (1.13-1.46), p = 0.001], post-traumatic stress-related symptoms ă at 3 [1.34 (1.17-1.53), p