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Oxford University Press (OUP), Public Health Ethics, 2(3), p. 128-136

DOI: 10.1093/phe/phq016

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Knowledge or Understanding? Informed Choice in the Context of Newborn Bloodspot Screening

Journal article published in 2010 by Stuart G. Nicholls ORCID, Lancaster University
This paper is available in a repository.
This paper is available in a repository.

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Abstract

The UK has a long established programme of newborn bloodspot screening. This operates under a model of in-formed choice. Understanding is central to thèinformed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of infor-mation. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.