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Oxford University Press (OUP), European Heart Journal, 21(28), p. 2661-2666

DOI: 10.1093/eurheartj/ehm398

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Ebstein's anomaly: factors associated with death in childhood and adolescence: a multi-centre, long-term study.

Journal article published in 2007 by Livia Kapusta, Rhona M. Eveleigh, Sumayah E. Poulino, Gideon J. du Marchie Sarvaas, Marry E. Rijlaarsdam, G. J. du Marchie-Sarvaas, Jan L. Strengers, Chris L. de Korte ORCID, Tammo Delhaas, C. L. de Korte, Ton Feuth, William A. Helbing
This paper is made freely available by the publisher.
This paper is made freely available by the publisher.

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Abstract

AIMS: The objective of this study is to establish factors associated with death after diagnosis of Ebstein's anomaly (EA) during childhood and adolescence. METHODS AND RESULTS: This study is a retrospective chart review. All paediatric patients were diagnosed with EA and followed in tertiary-care university hospitals between 1980 and 2005. Factors associated with death were obtained using the Cox regression and log-rank tests. Of the 93 patients with EA, 18 (19%) died and 75 (81%) survived. The median age at EA diagnosis and follow-up was 0 (range 0-162) and 86 months (range 0-216), respectively. After 35 months of diagnosis, the Kaplan-Meier survival probability remains stable at 80%. Young age at presentation (