"if they knew what I thought was important. that would help a lot more'': Methods for involving children and young people with life-limiting and life-threatening conditions in development of a paediatric palliative care outcome measure
Proceedings article published in 2022 by
Debbie Braybrook,
Lucy Coombes,
Anna Roach,
Hannah Scott,
Daney Haroardottir,
Katherine Bristowe,
Clare Ellis-Smith,
Michelle Hills,
Linda Maynard,
Anna-Karenia Anderson,
Eve Namisango,
Irene Higginson,
Julia Downing,
Myra Bluebond-Langner 
,
Lorna Fraser
and other authors.
,
Lorna Fraser
and other authors.
