Patient-centred outcome measure design: the perspectives and preferences of children and young people with life-limiting or life-threatening conditions

Published in 2023 by Daney Haroardottir, Lucy Coombes, Debbie Braybrook, Hannah Scott, Anna Roach, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner

, Joanna Laddie, Michelle Hills, Christina Ramsenthaler, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding

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