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2009 22nd IEEE International Symposium on Computer-Based Medical Systems

DOI: 10.1109/cbms.2009.5255442

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Federating health information systems to enable population level research

Journal article published in 2009 by John Ainsworth, Peter Crowther, Iain Buchan ORCID
This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

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Abstract

Epidemiology requires large-scale, high-resolution, representative population data sets; data extracted from electronic health record systems meets these criteria. However, within the UK, there is no single electronic health record, and the record of a patient's healthcare is fragmented over multiple systems and multiple organizations. In the SHORE project we have developed a proof of concept system that addresses these problems by retaining control of patient data at a local level, where it can be effectively interpreted and governed, and by overlaying on these data sources privacy-preserving record linkage providing a unified view of the health and care of the population.