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Cambridge University Press, The Journal of Laryngology & Otology, 6(136), p. 520-526, 2022

DOI: 10.1017/s0022215121004242

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Perspectives on paediatric sleep-disordered breathing in the UK: a qualitative study

Journal article published in 2022 by C. Haighton ORCID, R. M. Watson, J. A. Wilson ORCID, S. Powell
This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

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Abstract

AbstractObjectiveThere is limited understanding of treatment pathways for paediatric sleep-disordered breathing. This study explored current UK pathways and what is important to well-being for parents and children.MethodThe study comprised in-depth qualitative interviews (n = 22) with parents of children (2–9 years) with symptoms of sleep-disordered breathing referred to a regional ENT clinic (n = 11), general practitioners who might refer these children to ENT (n = 5) and hospital doctors involved in treating these children (n = 6). Interviews were audio recorded, transcribed verbatim, anonymised and analysed thematically.ResultsGeneral practitioners rarely identify seeing children with sleep-disordered breathing; conversely hospital doctors identify unsuspected issues. Parents are worried their child will stop breathing, but routes to referral and diagnosis are not straightforward. Modern technology can aid investigation and diagnosis. Patient weight is an issue for general practitioners and hospital doctors. Adenotonsillectomy is the treatment of choice, and information on paediatric sleep-disordered breathing is needed.ConclusionGuidelines for the management of paediatric sleep-disordered breathing are needed.