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Wiley, Internal Medicine Journal, 6(51), p. 988-992, 2021

DOI: 10.1111/imj.15357

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Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions

This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

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Abstract

AbstractClinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt‐out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision‐making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.