Dissemin is shutting down on January 1st, 2025

Published in

IOS Press, Studies in Health Technology and Informatics, 2022

DOI: 10.3233/shti220764

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Electronic Patient Reported Outcomes for Miscarriage Research in Tommy’s Net

This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

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Abstract

The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported. Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey. Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use. Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.