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Future Medicine, Neurodegenerative Disease Management, 2(10), p. 91-97, 2020
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How can we improve patient-centered care of motor neuron disease?
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Abstract
This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.