Dissemin is shutting down on January 1st, 2025

Published in

BMJ Publishing Group, Journal of Medical Ethics, 12(45), p. 811-816, 2019

DOI: 10.1136/medethics-2018-105212

Links

Tools

Export citation

Search in Google Scholar

Familial disclosure by genetic healthcare professionals: a useful but sparingly used legal provision in France

This paper was not found in any repository, but could be made available legally by the author.
This paper was not found in any repository, but could be made available legally by the author.

Full text: Unavailable

Green circle
Preprint: archiving allowed
Green circle
Postprint: archiving allowed
Red circle
Published version: archiving forbidden
Data provided by SHERPA/RoMEO

Abstract

Familial disclosure of genetic information is an important, long-standing ethical issue that still gives rise to much debate. In France, recent legislation has created an innovative and unprecedented procedure that allows healthcare professionals (HCPs), under certain conditions, to disclose relevant information to relatives of a person carrying a deleterious genetic mutation. This article will analyse how HCPs in two medical genetics clinics have reacted to these new legal provisions and show how their reticence to inform the patients’ relatives on their behalf leads them to use this option sparingly.