Marfan syndrome in childhood: parents’ perspectives of the impact on daily functioning of children, parents and family; a qualitative study
Journal article published in 2019 by
Jessica Warnink-Kavelaars 
,
Anita Beelen,
Sarah Dekker,
Frans Nollet,
Leonie A. Menke,
Raoul H. H. Engelbert
,
Anita Beelen,
Sarah Dekker,
Frans Nollet,
Leonie A. Menke,
Raoul H. H. Engelbert
This paper is made freely available by the publisher.
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