Published in
MDPI, International Journal of Environmental Research and Public Health, 8(15), p. 1644
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Recommendations for Improving the Quality of Rare Disease Registries
Journal article published in 2018 by
Yllka Kodra,
Jérôme Weinbach,
Manuel Posada-De-La-Paz,
Alessio Coi 
,
S. Lemonnier,
David van Enckevort,
Marco Roos,
Annika Jacobsen,
Ronald Cornet,
S. Ahmed,
Virginie Bros-Facer,
Veronica Popa,
Marieke Van Meel,
Daniel Renault,
Rainald von Gizycki
and other authors.
,
S. Lemonnier,
David van Enckevort,
Marco Roos,
Annika Jacobsen,
Ronald Cornet,
S. Ahmed,
Virginie Bros-Facer,
Veronica Popa,
Marieke Van Meel,
Daniel Renault,
Rainald von Gizycki
and other authors.
This paper is made freely available by the publisher.
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