本研究目的為探討先天性代謝異常病童母親親職壓力，對教養態度及其相關之影響。研究設計採立意取樣，個案來源於北部某醫學中心基因醫學部門診，共有64位先天代謝異常病童母親參與研究。研究工具為結構式問卷，內容包含病童基本屬性、母親基本屬性、飲食控制狀況、母親親職壓力量表及母親教養態度量表。究結果如下：、先天性代謝異常病童母親對親職壓力感受程度由高而低依序為：來自親職愁苦壓力、來自困難兒童壓力、來自親子互動失調壓力。而子題部分排序前三名為：1.生活中有不少令我煩惱的事情；2.犧牲了許多自己的生活；3.要孩子去做某些事或不要他做某些事。、病童母親親職壓力與其年齡有顯著負相關，母親年齡層越大，其親職壓力越小。而在飲食控制情形部分，病童飲食控制越好，母親之親職壓力相對越低。、母親在教養態度方面，對於年紀越小病童，較常使用放任之教養態度。在母親教育程度部分，大專教育程度之母親，對病童較多採民主之教養態度。、病童母親整體親職壓力與放任教養態度呈正相關，採取放任教養態度越多，母親親職壓力越大，放任教養態度在親職愁苦壓力部分有顯著正相關，愛護與民主教養態度與親子互動失調呈負相關。、以多元迴歸分析發現，飲食控制情形對病童母親整體親職壓力有負面影響，病童飲食控制越差，其母親親職壓力越高。在親職壓力三面向部份，飲食控制情形對親子互動失調及困難兒童也有負面影響，飲食控制不好，其親子互動失調及困難兒童面向壓力也越大。、教養態度對母親壓力也有影響，母親採放任教養態度者，其親職壓力越高，母親採民主教養態度者，其親職壓力越低，也就是說，較常採取放任之教養態度的母親壓力越大，反之較常採取民主之教養態度的母親壓力越低。而在親職愁苦面向，母親採放任教養態度，其親職愁苦層面壓力也就越大；在親子互動失調面向，母親採愛護教養態度，其親子互動失調壓力越低。 ; The purpose of this study was to investigate the parental stress and rearing practice of mothers of children with inherited metabolic disease and to explore the related facters. Study subjects consisted of 64 mothers of children with inherited metabolic disease. They were all recruited by purposive sampling. The data were collected by questionnaires, including: (1) the demographic data of the children and mother, (2) the condition of dietary control, (3) parental stress scale, and (4) the maternal rearing practice scale.he major findings of study are as follows:. Parental stress for mothers of children with inherited metabolic disease was in order: the stress from parental care, the stress from disable child, and the stress from irregular relationship between parents and children. And the order of item score was: (1) There are many things bothered me. (2) It takes a lot of my livelihood. (3) Have a request in doing or not doing something to their children. The parental stress and mother’s age had significant negative correlation: the older mother had the lower parental stress. In dietary control, the better dietary control of sick children and the lower parental stress of mothers were correlated. In maternal rearing practice, the mother had more nonintrusiveness rearing practice for younger sick children. In educational background, the mother of college education would take more democratic rearing practice. The overall parental stress and nonintrusivness rearing practice had positive correlation. Mothers taking more nonintrusivness rearing practice had the larger parental stress. The nonintrusivness rearing practice had significant positive correlation with suffering parental stress. Good care and democratic rearing practice had noticeable negative correlation. In multiple regression analysis, dietary control had negative influence on overall parental stress. Children with worse dietary control the mother had the higher parental stress. . Rearing practice had impact on maternal stress. Mothres taking more nonintrusivness rearing practice had larger parental stress. Mothers taking more democratic rearing practice had lower parental stress. In another word, the more often taking nonintrusivness rearing practice the larger of maternal stress. On the contrary, the more often taking democratic rearing practice the lower of maternal stress. ; 摘要 iii一章 緒論 1一節 研究動機 1二節 研究目的 2三節 名詞界定 3二章 文獻查證 4一節 先天性代謝異常疾病 4二節 親職壓力相關概念 8三節 教養態度 18四節飲食行為理論 24三章 研究架構及假設 27一節 研究架構 27二節 研究假設 28四章 研究方法 29一節 研究設計 29二節 研究對象 29三節 研究工具 30四節 資料收集 32五節 資料處理及分析 33五章 研究結果 35一節 研究對象基本屬性 35二節 先天代謝異常病童母親親職壓力 41四節 代謝異常病童母親教養態度分析 58五節 母親親職壓力與母親教養態度相關性 69六章 討論 72一節 母親的親職壓力 72二節 母親之教養態度 77三節 母親親職壓力與教養態度 79七章 結論、限制與建議 81一節 結論 81二節 限制與建議 84八章 參考資料 87文文獻 87文文獻 95 ; 學位:碩士 ; 學年度:97 ; 學號:P96448012 ; 分子醫學研究所 ; 醫學院 ; 博碩士論文