SAGE Publications, Dementia: The International Journal of Social Research and Practice, 3(8), p. 424-431, 2009
DOI: 10.1177/14713012090080030703
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This paper reports on the background and design of an innovative study seeking to develop and test a dementia specific approach to palliative care for older people in care homes, entitled Evidence-based interventions in dementia towards the end of life (EVIDEM EoL). The study uses a two-phase prospective design. Phase I intends to explore and document characteristics and support needs for people with dementia in care homes towards the end of life. Data from phase I informs phase II, the development and testing of a dementia specific education and support tool for palliative care in care homes. This paper reports on the study's background and phase I design. The study is part of the EVIDEM research programme (Evidence-based Interventions in Dementia) (www.evidem.org.uk).