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All papers authored by Rachel Knowles

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2018 Emma Butcher

ORCID

, Carol Dezateux

ORCID

, Rachel L. Knowles

ORCID

Risk factors for permanent childhood hearing impairment

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Jo Wray

ORCID

, Katherine Brown

ORCID

, Jenifer Tregay

ORCID

ORCID

, Rachel Knowles

ORCID

ORCID

ORCID

Parents’ Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum

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2017 Christian Ohmann, Rita Banzi, Steve Canham, Serena Battaglia, Mihaela Matei, Christopher Ariyo, Lauren Becnel, Barbara Bierer, Sarion Bowers, Luca Clivio, Monica Dias, Christiane Druml, Hélène Faure, Martin Fenner, Jose Galvez and 26 other authors

Sharing and reuse of individual participant data from clinical trials: principles and recommendations

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2016 Rl Knowles

ORCID

, Deborah Ridout, Sonya Crowe, Catherine Bull, Jo Wray, Jenifer Tregay, Rc Franklin, Dj Barron, David Cunningham, Rc Parslow, Kl Brown

Ethnic and socioeconomic variation in incidence of congenital heart defects

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J. Wright, D. Wilson, A. Wong, P. Thakker, Rl L. Knowles

ORCID

, Knowles Rl, B. Craig, R. Martin, Valerija Tadic, D. Kenny, P. Daubeney, M. Rigby, Ailbhe Hogan, A. Magee, E. Shinebourne and 23 other authors

Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study

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Sonya Crowe, Rachel Knowles

ORCID

, Jo Wray, Jenifer Tregay, Deborah A. Ridout, Martin Utley, Rodney Franklin, Catherine L. Bull, Katherine L. Brown

Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease

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Sonya Crowe, Deborah A. Ridout, Rachel Knowles

ORCID

, Jenifer Tregay, Jo Wray, David J. Barron, David Cunningham, Roger C. Parslow, Martin Utley, Rodney Franklin, Catherine Bull, Katherine L. Brown

Death and Emergency Readmission of Infants Discharged After Interventions for Congenital Heart Disease: A National Study of 7643 Infants to Inform Service Improvement

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Jenifer Tregay, Jo Wray, Sonya Crowe, Rachel Knowles

ORCID

, Piers Daubeney, Rodney Franklin, David Barron, Sally Hull, Nick Barnes, Catherine Bull, Katherine L. Brown

Going home after infant cardiac surgery: a UK qualitative study

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Jenifer Tregay, Katherine L. Brown, Sonya Crowe, Catherine Bull, Rachel L. Knowles

ORCID

, Liz Smith, Jo Wray

Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study

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Jenifer Tregay, Katherine Brown, Sonya Crowe, Catherine Bull, Rachel Knowles

ORCID

, Jo Wray

“I was so worried about every drop of milk” - feeding problems at home are a significant concern for parents after major heart surgery in infancy: Feeding problems after infant cardiac surgery

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2013 Carol Dezateux, Peter Brocklehurst, Simon Burgess, Paul Burton, Anne Carey, Debbie Colson, Chris Dibben, Paul Elliott, Alan Emond, Harvey Goldstein, Hilary Graham, Frank Kelly, Rachel Knowles

ORCID

, David Leon, Ronan Lyons and 3 other authors

Life Study: a UK-wide birth cohort study of environment, development, health, and wellbeing

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Rachel L. Knowles

ORCID

, Javaria M. Khalid, Juliet M. Oerton, Peter C. Hindmarsh, Christopher J. Kelnar, Carol Dezateux

ORCID

Late clinical presentation of congenital adrenal hyperplasia in older children: findings from national paediatric surveillance

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Valerija Tadic, Ailbhe Hogan, Nidhi Sobti, Rl L. Knowles

ORCID

, Js S. Rahi

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review.

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Rachel L. Knowles

ORCID

, Catherine Bull

Longer-term survival and health outcomes for children living with congenital heart defects

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2012 Rachel Knowles

ORCID

, Gruschen Veldtman, Ej Hickey, Timothy Bradley, Aungkana Gengsakul, Gd Webb, Wg Williams, Bw McCrindle

Functional health status of adults with tetralogy of Fallot: matched comparison with healthy siblings.

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Rl L. Knowles

ORCID

, Catherine Bull, Christopher Wren, Carol Dezateux

ORCID

Mortality with congenital heart defects in England and Wales, 1959-2009: exploring technological change through period and birth cohort analysis.

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Jm M. Khalid, Jm M. Oerton, Carol Dezateux

ORCID

, Pc C. Hindmarsh, Cj J. Kelnar, Rl L. Knowles

ORCID

Incidence and clinical features of congenital adrenal hyperplasia in Great Britain.

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2009 Rl L. Knowles

ORCID

, Catherine Bull, Christopher Wren, Carol Dezateux

ORCID

Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects

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2007 Rachel L. Knowles

ORCID

, Ingolf Griebsch, Catherine Bull, Jacqueline Brown, Christopher Wren, Carol Dezateux

ORCID

Quality of life and congenital heart defects: comparing parent and professional values

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Ingolf Griebsch, Rachel L. Knowles

ORCID

, Jacqueline Brown, Catherine Bull, Christopher Wren, Carol A. Dezateux

ORCID

Comparing the clinical and economic effects of clinical examination, pulse oximetry, and echocardiography in newborn screening for congenital heart defects: A probabilistic cost-effectiveness model and value of information analysis

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